The Caregivers’ Perceptions Toward Self- Stigma and Quality of Life Among Individuals with Mental Illness in Sarawak
DOI:
https://doi.org/10.31674/mjn.2023.v15isupp1.001Abstract
Introduction: Stigma is a condition whereby a person adopts stigmatizing views widely held by the public, resulting in low self-esteem and a lack of hope. People with mental illness experienced a loss of control over life and diminished function, which caused them to be discriminated against and rejected, which led them to experience a poor quality of life. Objective: To explore self-stigma and its role in affecting the quality of life among individuals with mental illness in the community in Sarawak. Methods: The study utilized a generic qualitative descriptive approach that aimed to explore the perceptions among family members and caregivers towards stigma and quality of life among individuals with mental illness in the community. Purposive sampling was utilized. Twenty semi-structured interviews were conducted in the major divisions of Sarawak. Thematic analysis was used to identify categories and themes in respondents’ accounts of their perceptions related to their self-stigma and quality of life as individuals with mental illness in Sarawak. Results: Five main themes were constructed, namely: meager quality of life, poor sense of self-reliance, feelings of discrimination by the community, and inability to contribute and participate socially. These findings demonstrate that self-stigma does have a role and affects the quality of life of these individuals and their caregivers pessimistically. Conclusion: Hence, there is a dire need to incorporate non-governmental organizational active reduce participation and policy to establish positive mental health initiatives and social support to self-stigma and improve the quality of life of individuals with mental illness within Sarawak and in the global context.
Keywords:
Mental Illness, Quality of Life, Self StigmaDownloads
References
Baxter, L., Burton, A., & Fancourt, D. (2022). Community and cultural engagement for people with lived experience of mental health conditions: What are the barriers and enablers? BMC Psychology, 10, 71. https://doi.org/10.1186/s40359-022-00775-y
Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77-101. https://dx.doi.org/10.1191/1478088706qp063oa
Cham, C.Q.,Ibrahim, N.,Siau, C.S., Kalaman, C.R., Ho, M.C.;Yahya, A.N., Visvalingam, U., Roslan,S., Abd Rahman, F.N., & Lee, K.W. (2022). Caregiver Burden among Caregivers of Patients with Mental Illness: A Systematic Review and Meta-Analysis, Healthcare, 10,2423. https://doi.org/10.3390/healthcare10122423
Chronister, J., Fitzgerald, S., & Chou, C. C. (2021). The meaning of social support for persons with serious mental illness: A family member perspective. Rehabilitation Psychology, 66(1), 87–101. https://doi.org/10.1037/rep0000369
Corrigan, P.W., Druss B.G. & Pelick, D.A. (2014). The impact of mental illness stigma on seeking and participating on mental health care. Psychological Science in Public Interest, 15(2), 37-70, SAGE Publishing. https://doi.org/10.1177/1529100614531398
Dako-Gyeke, M., & Asumang, S. (2013). Stigmatization and discrimination Experiences of persons with mental illness: insights from a qualitative study in Southern Ghana. Social Work & Society, International Online Journal, 11(1). https://www.socwork.net/sws/article/view/362/712. Accessed on 19th August, 2022.
Dimbulana, N., Alshagga, M., Al‐Kabsi, A. M., Abdulsalam, R., & Yan, P. (2023). Mental Health Awareness and Parents’communication Among University Students in Malaysia: A Cross-Sectional Study. Malaysian Journal of Public Health Medicine, 23(2), 291-299. https://doi.org/10.37268/mjphm/vol.23/no.2 .
Di Lorenzo, R., Girone, A., Panzera, N., Fiore, G., Pinelli, M., Venturi, G., ... & Ferri, P. (2021). Empathy and perceived burden in caregivers of patients with schizophrenia spectrum disorders. BMC Health Services Research, 21, 1-13. https://doi.org/10.1186/s12913-021-06258-x
Ebrahim, O. S., Al-Attar, G. S. T., Gabra, R. H., & Osman, D. M. M. (2020). Stigma and burden of mental illness and their correlates among family caregivers of mentally ill patients. The Journal of the Egyptian Public Health Association, 95(1), 31. https://doi.org/10.1186/s42506-020-00059-6
Egbe, C.O., Brooke-Sumner, C., & Kathree, T. (2014).Psychiatric stigma and discrimination in South Africa: perspectives from key stakeholders. BMC Psychiatry, 14, 191. https://doi.org/10.1186/1471-244X-14-191
Gater, A., Rofail, D.,Tolley, C., Marshall, C.,Abetz-Webb, L., Zarit, S.H., & Berardo, C.G. (2014). “Sometimes It’s Difficult to Have a Normal Life”: Results from a Qualitative Study Exploring Caregiver Burden in Schizophrenia", Schizophrenia Research and Treatment, https://doi.org/10.1155/2014/368215
Grover, S., Pradyumna., & Chakrabarti, S. (2015). Coping among the caregivers of patients with schizophrenia. Industrial Psychiatry Journal, 24(1), 5–11. https://doi.org/10.4103/0972-6748.160907
Guo, Y., Qu, S., & Qin, H. (2018). Study of the relationship between self-stigma and subjective quality of life for individuals with chronic schizophrenia in the community. General Psychiatry, 31(3). https://doi.org/10.1136/gpsych-2018-100037
Gupta, A., Solanki, R.K., Koolwal, G.D., & Gehiot, S. (2014). Psychological well-being and burden in caregivers of patients with Schizophrenia. International Journal Medical Science Public Health, 4, 70-76. https://dx.doi.org/10.5455/ijmsph.2015.0817201416
Henderson, C., Evans-Lacko, S., & Thornicroft, G. (2013). Mental illness stigma, help seeking and public health programs. American Journal of Public Health, 103 (5). https://ajph.aphapublications.org/doi/full/10.2105/AJPH.2012.301056. Accessed on 18th July, 2022.
Holubova, M., Prasko, J., Matousek, S., Latalova, K., Marackova, M., Vrbova, K., Grambal, A., Slepecky, M., & Zatkova, M. (2016). Comparison of self-stigma and quality of life in patients with depressive disorders and schizophrenia spectrum disorders - a cross-sectional study. Neuropsychiatric Disease and Treatment, 12, 3021–3030. https://doi.org/10.2147/NDT.S121556
Husk, K., Lovell, R., Cooper, C., Stahl-Timmins, W., & Garside, R. (2016). Participation in environmental enhancement and conservation activities for health and well-being in adults: a review of quantitative and qualitative evidence. The Cochrane Database of Systematic Reviews, 2016(5), https://doi.org/10.1002/14651858.CD010351.pub2
Karnieli-Miller, O., Perlick, D.A., Nelson, A., Mattias, K., & Corrigan P. (2013) Family members’ of persons living with a serious mental illness: Experiences and efforts to cope with stigma. Journal of Mental Health, 22: 254–262. https://doi.org/10.3109/09638237.2013.779368
Krajewski, C., Burazeri, G., & Brand, H. (2013). Self-stigma, perceived discrimination and empowerment among people with a mental illness in six countries: Pan European stigma study. Psychiatry Research, 210(3):1136-46. https://doi.org/10.1016/j.psychres.2013.08.013
Li, Y., Zhuo, Y., & Liu, Y. (2023). Community Participation Among Individuals with Severe Mental Disorders During COVID-19 Pandemic. Community Mental Health Journal, 59(3), 486–497. https://doi.org/10.1007/s10597-022-01032-7
Link, B.G., & Phelan, J.C. (2014). Mental Illness Stigma and the Sociology of Mental Health. In: Johnson, R., Turner, R., Link, B. (eds) Sociology of Mental Health. Springer Briefs in Sociology. Springer, Cham. https://doi.org/10.1007/978-3-319-07797-04
Mak, W. W. S., & Cheung, R. Y. M. (2012). Psychological distress and subjective burden of caregivers of people with mental Illness: The role of affiliate stigma and face concern. Community Mental Health Journal, 48(3), 270–274. https://doi.org/10.1007/s10597-011-9422-9
Monnapula-Mazabane, P., & Petersen, I. (2023). Mental health stigma experiences among caregivers and service users in South Africa: a qualitative investigation. Current Psychology, 42, 9427–9439. https://doi.org/10.1007/s12144-021-02236-y
Millner, U. C., Woods, T., Furlong-Norman, K., Rogers, E. S., Rice, D., & Russinova, Z. (2019). Socially Valued Roles, Self-Determination, and Community Participation among Individuals Living with Serious Mental Illnesses. American Journal of Community Psychology, 63(1-2), 32–45. https://doi.org/10.1002/ajcp.12301
Nxumalo, C. T., & Mchunu, G. G. (2017). Exploring the stigma related experiences of family members of persons with mental illness in a selected community in the iLembe district, KwaZulu-Natal. Health Sa Gesondheid, 22, 202-212. https://journals.co.za/doi/abs/10.1016/j.hsag.2017.02.002. Accessed on 20th September, 2022.
Ociskova, M., Prasko, J., Kamaradova, D., Grambal, A., & Sigmundova, Z. (2015). Individual correlates of self-stigma in patients with anxiety disorders with and without comorbidities. Neuropsychiatric Disease and Treatment, 11, 1767–1779. https://doi.org/10.2147/NDT.S87737
Papadopoulos, C., Foster, J., & Caldwell, K. (2013). Individualism-Collectivism’ as an Explanatory Device for Mental Illness Stigma. Community Mental Health Journal, 49, 270–280. https://doi.org/10.1007/s10597-012-9534-x
Rahmani, F., Roshangar, F., Gholizadeh, L., & Asghari, E. (2022). Caregiver burden and the associated factors in the family caregivers of patients with schizophrenia. Nursing Open, 9, 1995– 2002. https://doi.org/10.1002/nop2.1205
Singh, G. (2023). Surveillance of Mental Health Patients in the Emergency Department. Malaysian Journal of Medical Research (MJMR), 7(1), 30-33. https://doi.org/10.31674/mjmr.2023.v07i01.007
Rubio, R. R. M. A. (2023). The Filipino Concept of Mental Illness and Nurses’ Attitudes: A Scoping Review. The Malaysian Journal of Nursing (MJN), 15(1), 126-137. https://doi.org/10.31674/mjn.2023.v15i01.015
Shamsaei, F., Cheraghi, F., & Bashirian, S. (2015). Burden on Family Caregivers Caring for Patients with Schizophrenia. Iranian Journal of Psychiatry, 10(4), 239–245. https://www.semanticscholar.org/reader/ce976fb954e5d1106c47e7b3f6331144342e1208. Accessed on 26th August, 2022.
Sharma, H., Sharma, B., & Sharma, D.B. (2017). Burden, perceived stigma and coping style of caregivers of patients with schizophrenia and bipolar disorder. International Journal of Health Sciences Research, 7(11), 84–94.https://www.ijhsr.org/IJHSR_Vol.7_Issue.11_Nov2017/12.pdf
Shimage, M.E., Poggenpoel, M., Myburgh, C.P.H., & Ntshinyila, N. (2022). Lived experiences of family members caring for a relative with mental illness. International Journal of Africa Nursing Sciences, 16. https://www.sciencedirect.com/science/article/pii/S2214139122000154. Accessed on 10th September, 2022.
Thomas, E. C., Snethen, G., O'Shea, A., Suarez, J., Hurford, I., & Salzer, M. S. (2020). An Examination of the Community Participation Interests of Young Adults with Serious Mental Illnesses. The Journal of Behavioral Health Services & Research, 47(4), 526–543. https://doi.org/10.1007/s11414-019-09678-0
Thornicroft, G. (2016). Evidence for effective interventions to reduce mental-health-related stigma and discrimination. The Lancet, 387(10023). https://www.sciencedirect.com/science/article/pii/S0140673615002986. Accessed on 20th August, 2022.
Vrbova, K., Prasko, J., Holubova, M., Kamaradova, D., Ociskova, M., Marackova, M., Latalova, K., Grambal, A., Slepecky, M., & Zatkova, M. (2016). Self-stigma and schizophrenia: a cross-sectional study. Neuropsychiatric Disease and Treatment, 12, 3011–3020. https://doi.org/10.2147/NDT.S120298
Yang, L.H., Purdie- Vaughns, V., Kotabe, H., Link, B.G., Saw, A., Wong, G., & Phelan, J.C. (2013). Culture, threat and mental illness stigma: Identifying culture-specific threat among Chinese- American groups. Social Science & Medicine, 88, 56-67. https://www.sciencedirect.com/science/article/abs/pii/S0277953613002050?via%3Dihub. Accessed on 20th September, 2022.
Yin, Y., Zhang, W., Hu, Z., Jia, F., Li, Y., & Xu, H. (2014). Experiences of Stigma and Discrimination among Caregivers of Persons with Schizophrenia in China: A Field Survey. Plos One, 9(9): e108527. https://doi.org/10.1371/journal.pone.0108527
Zhang, Y., Subramaniam, M., Lee, S.P., Abdin, E., Sagayadevan, V., Jeyagurunathan, A., Chang, S., Shafie, S.B., Abdul Rahman, R.F., Vaingankar, J.A., & Chong, S.A. (2018). Affiliate stigma and its association with quality of life among caregivers of relatives with mental illness in Singapore. Psychiatry Research, 265:55-61. https://doi.org/10.1016/j.psychres.2018.04.044
Published
How to Cite
Issue
Section
License
Copyright (c) 2023 The Malaysian Journal of Nursing (MJN)
This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.