Experiences of Post-treatment Patients with Systemic Lupus in Indonesia


  • Mohamad Judha School of Nursing, Universitas Respati Yogyakarta, 55281 Indonesia
  • Elizabeth C. Baua School of Nursing and Allied Health Sciences, St. Paul University, Cagayan 3500 Philippines
  • Josephine D. Lorica School of Nursing and Allied Health Sciences, St. Paul University, Cagayan 3500 Philippines


Background: Indonesia is currently associated with lupus disease that tends to increase in number, based on data from the Lupus Indonesia Foundation.  About 90% of women are with lupus. Most women with reproductive status are inactive, and most want to have basic needs fulfillment disorders. As a result of the changes that arise and because of the long healing process and the disruption basic needs can cause prolonged sadness for the sufferer.

Aims: To develop the concept of nursing theory through research from participants suffering from Lupus. 

Methods: This research is qualitative research to explore the experience of participants looking for the meaning of life. The study consisted of nine participants with purposive samples.

Results: In this study data was obtained nine themes, among others: (1) Responses consisted of experience with Lupus disease, (2) Types of support obtained from the environment 3) Discrimination experienced (4) Efforts made to achieve recovery, (5) Ability to recognize signs and symptoms, (6) Changes in basic needs, and Effects of Lupus on activities (7) The effect of using drugs (8) Health services and resources(9) Changes in values, and beliefs.

Conclusion: The results of the study contained the response of patients in dealing with Lupus disease related to physical activity, psychological and environmental changes as well as changes in the value, beliefs, and beliefs of Lupus sufferers

Recommendation: The results suggest that healthcare workers must perform comprehensive care. Education awareness must be provided also. Holistic nursing care to be conducted. Future researchers must consider increasing the gender variation of participants in order to obtain a variety of themes.


Patient Lupus, The meaning of life, Experiences of post-treatment


Download data is not yet available.


Acne Blemish Control. (2010). Mengurangi gejala lupus dengan diet. Diperoleh dari http://www.acneblemishcontroltips.com/health-tips-and-recipes/alleviate-thesymptoms-of-lupus-with-diet.html?lang=id

Avendano, M., de Coulon, A., & Nafilyan, V. (2017). Does more education always improve mental health? Evidence from a British compulsory schooling reform (No. 17/10). HEDG, c/o Department of Economics, University of York.

Bastaman, H. D. (1996). Meraih hidup bermakna: Kisah pribadi dengan pengalaman tragis. Jakarta; Paramadina.

Bratawijaya, K. G. (2002). Imunologi dasar (Edisi kelima). Jakarta, UI.

Breitkopf, D. M., Jankowski, V., Ohl, K., Hermann, J., Hermert, D., Tenbrock, K., ... & Raffetseder, U. (2020). The YB-1: Notch-3 axis modulates immune cell responses and organ damage in systemic lupus erythematosus. Kidney International, 97(2), 289-303. https://doi.org/10.1016/j.kint.2019.09.031

Burkhardt, M. A. (1993). Characteristics of spirituality in the lives of women in a rural Appalachian community. Journal of Transcultural Nursing, 4(2), 12-18. https://doi.org/10.1177/104365969300400203

Dickson, V. V., & Wright, F. (2012). Nursing Theorists and Their Work by MR Alligood and AM Tomey (Eds.) (Maryland Heights, MO: Mosby Elsevier, 2010). Nursing Science Quarterly, 25(2), 203-204. https://doi.org/10.1177/0894318412437963

Dimarco, K. K., & Kolcaba, K. (2005). Comfort theory and its application to pediatric nursing. Pediatric nursing, 31(3), 187-194.

Dochterman, J. M., & Bulechek, G. M. (Eds.). (2008). Nursing Interventions Classification(NIC) Fifth Edition. St. Louis: Mosby Elsevier.

Jones, K. (2003). Depression and anxiety in patients with systemic lupus erythematosus. M.S. dissertation, University of Alaska Anchorage, United States -- Alaska. Retrieved June 18, 2010, from ProQuest Nursing & Allied Health Source. (Publication No. AAT 1418116).

Judha, M. (2020). Family Perception in Readiness Accepting Discharge Planning Determined by Nursing Advocacy Program. Indonesian Nursing Journal of Education and Clinic (INJEC), 4(2), 153-160. http://dx.doi.org/10.24990/injec.v4i2.268

Judha, M., & DI, S. (2015). Apa dan Bagaimana Penyakit Lupus? (Sistemik Lupus Eritematosus). Yogyakarta Penerbit : Gosyen Publishing ISBN : 978-602-1107-21-8 pp 14 -2.

Kolcaba, K., Tilton, C., & Drouin, C. (2006). Comfort theory: A unifying framework to enhance the practice environment. JONA: The Journal of Nursing Administration, 36(11), 538-544. https://doi.org/10.1097/00005110-200611000-00010

Komalig, F. M., Hananto, M., Sukana, B., & Pardosi, J. F. (2008). Faktor lingkungan yang dapat meningkatkan risiko penyakit lupus eritematosus sistemik. (eJournal 1) Jurnal Ekologi Kesehatan

Krinsky, R., Murillo, I., & Johnson, J. (2014). A practical application of Katharine Kolcaba's comfort theory to cardiac patients. Applied Nursing Research, 27(2), 147-150.

March, A., & McCormack, D. (2009). Nursing theory-directed healthcare: Modifying Kolcaba's comfort theory as an institution-wide approach. Holistic Nursing Practice, 23(2), 75-80. https://doi.org/10.1097/HNP.0b013e3181a1105b

Meller, S., Homey, B., & Ruzicka, T. (2005). Socioeconomic factors in lupus erythematosus. Autoimmunity Reviews, 4(4), 242-246. https://doi.org/10.1016/j.autrev.2004.11.008

Peterson, S. J., & Bredow, T. S. (Eds.). (2009). Middle range theories: Application to Nursing Research. 2nd ed. Philadelphia: Lippincott Williams & Wilkins.

Moghadam, Z. B., Rezaei, E., Faezi, S. T., Zareian, A., Ibrahim, F. M., & Ibrahim, M. M. (2019). Prevalence of sexual dysfunction in women with systemic lupus erythematosus and its related factors. Reumatologia, 57(1), 19. https://doi.org/10.5114/reum.2019.83235

Porter, D. F. (2000). The effects of active systemic lupus erythematosus on the daily life experiences of women diagnosed with the disease. Southern Illinois University at Carbondale.

Reed, P. G. (1987). Spirituality and well‐being in terminally ill hospitalized adults. Research in Nursing & Health, 10(5), 335-344. https://doi.org/10.1002/nur.4770100507

Roos, S. (2002). Chronic Sorrow: A Living Loss (Series in Death, Dying, and Bereavement). New York. Brunner-Routledge.

Rouse, K. A. G. (2004). Beyond Maslow's Hierarchy of Needs: What Do People Strive For?. Performance Improvement, 43(10), 27.

Shirato, S. (2005). How CAM helps systemic lupus erythematosus. Holistic Nursing Practice, 19(1), 36-39

Sitorus, R. (2006). Model praktik keperawatan profesional di rumah sakit. Jakarta; EGC.

Sriyuktasuth, A. (2002). Utility of Pender’s model in describing health promoting behaviors in Thai women with systemic lupus erythematosus. Doctoral dissertation, University of Alabama at Birmingham, USA. (UMI No 3066344).

Wallace, D. J. (2007). The lupus book: Panduan lengkap bagi penderita lupus dan keluarganya. Yogyakarta: B-First.

Wilson, L., & Kolcaba, K. (2004). Practical application of comfort theory in the perianesthesia setting. Journal of Perianesthesia Nursing, 19(3), 164-173. https://doi./org/10.1016/J.JOPAN.2004.03.006




How to Cite

Mohamad Judha, Elizabeth C. Baua, & Josephine D. Lorica. (2022). Experiences of Post-treatment Patients with Systemic Lupus in Indonesia. The Malaysian Journal of Nursing (MJN), 13(4). Retrieved from https://ejournal.lucp.net/index.php/mjn/article/view/1441